Partnership in Care on an Oncology Unit.
Niki Rowe, Staff Nurse, Alder Hey Children’s NHS Foundation Trust, Liverpool
Parental participation and role negotiation are central elements in family centred care, although research does suggest that such negotiation tends to be ad hoc depending on the relationship that develop between the family and health professionals. In paediatric oncology, healthcare professionals have often assumed that the life-threatening nature of the disease will ensure that parents are highly motivated but this research is being carried out on the back of numerous concerns/complaints from parents on a regional oncology unit, regarding lack of communication surrounding basic nursing care.
Lack of effective communication, professional expectations and issues of power and control often prevent open and mutual negotiation between families and health professionals, especially nurses. This research aims to determine how partnership in care and negotiation of roles can work on the oncology unit. by providing questionnaires to parents of children (up to the age of 12 years) who are at least 12 months into treatment. These will then be audited and checklist/guidelines will be produced as a useful tool to assist nurses to determine a parent’s desire for involvement in their child’s care.
An audit and evaluation, both from parents and nursing staff will be undertaken to evaluate the effectiveness of a documentary tool designed to formalise the role, negotiate and improve communication between parents and nurses. Partnership should be considered in relation to negotiation and
equality of care, with parents as equal partners and a shift of responsibility in
care so that nurses assume a supervisory role.