By Joann Arnold,2014-09-03 15:00
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    Getting Better” with COPD

A. When you first developed COPD

    What was your first hint that something was wrong with you? What made you seek 1 help when your first developed trouble breathing?

    B. Discuss your experiences with COPD flare ups in your home and community (not as an in-patient of the hospital). These may include your experiences during family doctor visits, medical tests, pharmacy visits and while at home.

    What was your first hint that something was wrong with you? What made you seek 2 help when your first developed trouble breathing?

    How long does it take you to book an appointment with your doctor when you realize

    you are having more breathlessness, cough and/or phlegm? If there were delays in

    the past, why did they occur? What do you do during public holidays or weekends 3 when you need to see a doctor? How can we improve access to your doctor or other

    healthcare professionals for when your COPD symptoms worsen?

    What do you know you about promptly recognizing and treating a COPD Flare up? 4 Do you have a COPD Flare up Action Plan?

    Who do you speak to when you notice changes in your health? Does your doctor

    ask you about your shortness of breath, your phlegm or how you are managing your 5 lung disease in the doctor’s office?

    Do you have any ideas how we might improve your COPD flare up treatment at

    home or in the community? What was the most helpful things that help you to get 6 better?

C. Discuss your experiences in the emergency department or when you are

     admitted to hospital for a COPD flare up (bad shortness of breath, more cough

     and phlegm and perhaps green or yellow phlegm.

    What prompted you to go to the hospital? How did you get there? How long did you 7 wait to go to the hospital after your symptoms of a COPD flare up came on?

    Describe your experiences in the emergency department. How long did you wait to

    8 see a doctor? Did you receive prompt testing and treatment? Were tests and your test

    results and diagnosis explained to you to your satisfaction?

    IH COPD Working Group “Getting Better” May 13, 2006 DRAFT

    While in hospital did you receive education about managing your COPD? This may

    include how and when to take medications, the need to exercise, how to detect future

    9 COPD flare ups. Did you receive all the information you needed to feel safe going

    back at your residence? Were follow up appointments arranged? What could have

    been better? What good things did you experience?

    If you are or were a smoker during your last hospitalization. Were you offered a 10 nicotine patch and advice and/or support to help you stop smoking in hospital or


    11 Any thoughts about how we might improve hospital care for COPD patients?

    D. Discuss your experiences with a lung specialist or internist. (Also called a

     Respirologist or Pulmonologist )

    Describe when and why your doctor referred you to a lung specialist from his or her 12 office or the hospital? Comment about waiting to see the specialist.

    Did the appointment cause you any inconvenience in terms of your work or daily 13 schedule? Comment about the appointment. Were all of your concerns and questions


    Describe any education or teaching you received about your lung disease at the lung 14 specialist’s office.

    E. Discuss your experiences with stopping smoking. This may not apply to you.

    If you smoke, has your doctor advised you to stop? How often do they bring up the

    topic of smoking with you? What about with other healthcare professionals such as 15 nurses, therapists or dental staff? Describe your experiences such as referrals or

    receiving information.

    Were stop smoking medications such as the patch recommended to you? Who 16 provided you information about correctly using these medications if you did use


    Describe what or who helped you the most to quit smoking. What do you need if you 17 are still smoking?

    F. Discuss your experiences with Pulmonary Rehabilitation. This may not apply to


18 Where you offered pulmonary rehabilitation?

    19 Are the classes held at convenient times and at a good location for you?

    Do you have any concerns about access to the rehab exercise or education areas or 20 parking?

    21 Were you satisfied with the education you received? Tell us about it.

    If you took Respiratory Rehabilitation, how can we make it better? If not, why didn’t 22 you participate?

    G. Discuss your experiences with other chronic illnesses. These may include anxiety,

     panic disorder, depression, heart disease and osteoporosis.

23 Do you have anxiety or any other problems that complicates your COPD?

IH COPD Working Group “Getting Better” May 13, 2006 DRAFT

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