Combined Section B and C Questions for our

By Jim Watkins,2014-09-03 15:01
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Combined Section B and C Questions for ourComb

    Experiences with Emphysema and Chronic Bronchitis Experiences with Emphysema and Chronic Bronchitis

This is a guide to the focus group discussion to be held on June 13, 2006.

    4 general topics will be explored. A moderator will ask people from our focus group to share their experiences and ideas with others as we move through these 4 topics. The group comments will be written down and used to make recommendations to improve future care for people with chronic lung disease.

    Please feel free to make notes prior to the meeting for your own use or to leave with the focus group moderator after the meeting. Some healthcare professionals will be on hand to support you during this meeting. If you have any concerns or questions, please ask the moderator at the meeting to assist you. You do not have to answer questions which do not pertain to you or if you feel your answer is confidential.

1. Diagnosis, Smoking and events called Flare ups

    a. What was your first hint that something was wrong with your breathing? What made you

     seek help? Who did you talk to?

    b. When you were told you had COPD (chronic lung bronchitis or emphysema) were you still

     smoking? Did you stop? Why did you quit or continue smoking?

    c. How often does your doctor and other healthcare professionals bring up the topic of

     smoking with you?

    d. If you are or ever were a smoker while in hospital, were you offered a nicotine patch,

     advice and/or support to help you stop smoking in hospital or afterward?

    e. Who do you speak to when you notice changes in your health? Does your doctor ask you

     about your shortness of breath, your phlegm or how you are managing your lung disease in

     the doctor’s office?

    f. What do you know you about promptly recognizing and treating a COPD Flare up? Do you

     have a COPD Flare up Action Plan? See Legend

IH COPD Working Group “COPD Experiences” June 6, 2006 DRAFT

    g. How long does it take you to book an appointment with your doctor when you realize you

     are having more shortness of breath, cough and/or phlegm? What do you do during public

     holidays or weekends when you need to see a doctor?

    h. Do you have any ideas how we might improve your COPD flare up treatment at home or in

     the community? What were the most helpful things that helped you to get better in the past?

    i. Describe how often you see your family doctor for review of your breathing problems?

    j. Do you have physical access problems or other concerns getting to see doctors, having tests

     or other health-related appointments?

2. Self-Management and Pulmonary Rehabilitation

    a. Tell us what you know about taking care of your lung health. How did you learn to

     properly manage your lung disease and other health problems?

    b. What do you need to keep yourself going? How and where do you get information to

     manage your lung disease?

    c. Describe what you would (or did) do if you could no longer perform some basic activities

     such as bathing, preparing food taking medications, performing housework and home

     maintenance. Where would you go for help? Who is helping you right now?

    d. Are you active? How do you keep active? What things, help or programs are available to

     you to exercise?

    e. Were you offered pulmonary rehabilitation? Describe your experiences.

C. Inhalers and Support Groups

    a. Do you understand why you are taking puffers or inhalers? Describe the reasons.

    b. Where did you learn how to take them? Is your inhaler technique reviewed by anyone?

    c. What are some of the problems you have experienced taking inhaled medications?

     Examples: Cost, side effects, remembering to take them, how to take them, how to tell

     when they are empty, cleaning a spacer or aerochamber.

d. Describe any support groups you attend to improve your knowledge and health.

IH COPD Working Group “COPD Experiences” June 6, 2006 DRAFT

D. Health Promotion and Disease Prevention

    a. How does pollution or air quality in your home or our community affect you?

b. What do you know about the flu shot?

c. What do you know about the pneumonia vaccination?

    Do you have any ideas or suggestions to help us improve the lives of people with lung disease?

Thank you

Jason Kennedy. COPD Project Manager

    Central Okanagan Interior Health

    220-1815 Kirschner Road

    Kelowna, BC V1Y 4N7

    (250) 870-4688


Legend Legend

    COPD is Chronic Obstructive Pulmonary Disease. You may know it as emphysema or chronic bronchitis.

A COPD flare up refers to when you have persistent signs and symptoms like:

; worsening of your shortness of breath level

    ; coughing up more phlegm than normal

    ; the color of your phlegm changes from normal to green or yellow.

    Healthcare professionals include nurses, pharmacists, therapists, dentists and others.

Pulmonary Rehabilitation is a formal 10 week long exercise and education program held at the

    Kelowna General Hospital and requires a physician referral.

IH COPD Working Group “COPD Experiences” June 6, 2006 DRAFT

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