Real Facts of Life Osteoporosis Constituency Toolkit

By Roy Henry,2014-06-26 21:14
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Real Facts of Life Osteoporosis Constituency Toolkit ...

Lung cancer is a major issue

Lung cancer remains the UK’s biggest killer cancer. Each year more than 38,000 1new cases are diagnosed and the disease claims over 33,500 lives more than the

    death toll from breast cancer, bowel cancer and leukaemia combined. In the UK

    one person dies from the disease every 15 minutes.

Improving awareness of signs and symptoms will, we hope, encourage the earlier

    presentation needed to enable swift diagnosis and improved chances of survival.

The UK Lung Cancer Coalition (UKLCC) is very grateful for the work you are doing

    in your pharmacy to raise awareness of lung cancer during Lung Cancer Awareness

    Month in November. Posters on show and leaflets available for patients to pick up

    in your pharmacy may be the final trigger that encourages someone to seek advice

    from their GP about worrying signs and symptoms.

Going the extra mile for Lung Cancer Awareness Month

During November charities, healthcare professionals and partner companies will be

    working hard to raise awareness of the disease.

You can help even more by inviting your local MP to come to your pharmacy for a

    photocall in Lung Cancer Awareness Month. By generating local press coverage for

    your photocall, you and your local MP can help to:

    ? Raise awareness of lung cancer signs and symptoms

    ? Encourage patients concerned about possible symptoms to seek advice

    from their GP

    ? Encourage smokers to quit improving their health and reducing their

    risk of developing smoking-related diseases

    ? Publicise your good work in raising awareness of lung cancer

This toolkit provides all the information you need to arrange your photocall,


     1 Figures from Cancer Research UK, available at:

    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

    ? How to find your local MP

    ? A template invitation letter for your MP

    ? Helping your visit go smoothly - tips for what to do on the day

    ? Things to talk about with your MP and to ask them to do

    ? A briefing document about lung cancer to give to the MP

    ? A sample press invitation

    ? A draft press release for local media (this will need your MP’s approval)

    ? A thank you letter for your MP

Finding out who your local MP is

The simplest way to find your local MP is to check online. The Parliament website

    has an online locator. Type in your postcode and the site will tell you who your MP

    is and give you their contact details. The MP locator service can be found at:

You could also call the House of Commons Information Office on 020 7219 4272.

    Alternatively you could telephone the information line of your local council (the

    number will be in the front section of your local phone book).

Contacting your local MP

MPs are pleased to receive letters from their constituents, and to have the

    opportunity to find out about their concerns.

To make things easy, we have included a sample invitation letter for you, but do of

    course feel free to re-write this as you think best.

All MPs have the same contact address in Westminster: House of Commons,

    London SW1A 0AA.

However, if you prefer you can write to them at their constituency. You can also

    email or phone your MP. The Parliamentary locator service will be able to tell you

    their email or phone details.

Most MPs are in Westminster between Monday and Thursday, when the House is

    sitting. So they are most likely to want to do a photocall on a Friday or at a


Your MP’s diary of engagements will be very crowded so they are not likely to have

    a great deal of time to spare perhaps only an hour or so. The important thing is

    getting the preparation right, so you make the most of your time with them.

    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

    What to do on the day

    There are things you can do to help prepare and make your MP’s visit go smoothly.

    Below are some tips on how to make the most of the time you have with your MP:

    ? Be clear make sure the MP’s office knows where your pharmacy is, and

    what time your are expecting them to arrive. If you can, send them a

    map. Let them know the names of other colleagues who will be

    attending and if you have invited the local press

    ? Think about the key points that you want to make for example,

    the numbers of people who come into your pharmacy, whether people ask

    you for advice on persistent coughs, smoking cessation etc. If it helps,

    write them on a card or piece of paper to have with you as a prompt. We

    are also enclosing a briefing about lung cancer in this toolkit which you

    can give to the MP for them to take away.

    ? What would it be interesting for them to see? Most MPs will be

    keen to see things as they really are. They would value opportunities to

    talk with you and your colleagues about what it’s like running a

    community pharmacy.

? Suggest how your MP can help MPs like to help but will want

    suggestions on what to do. They can help you find out more information,

    for example about the treatment or smoking cessation policies of the

    Primary Care Trust in your area, and they can also influence policies at a

    local or national level. They may be able to table some questions about

    relevant issues in Westminster or write to the Health Minister to express

    their concerns about lung cancer.

? Publicise the visit many MPs will be keen to highlight their visit to

    local press and this can be a good way of gaining more publicity for Lung

    Cancer Awareness Month. We’ve included a draft invitation to your local

    press if you’re happy for them to come along to the visit, and a draft

    press release to send to local media with the photos.

? What would make a good photo? - Think about what would make a

    good photo for the local press. MPs usually welcome the opportunity to

    have their photo taken in eye catching situations for example with a

    piece of machinery or in front of a poster publicising Lung Cancer

    Awareness Month of holding up a leaflet about signs and symptoms. It’s

    always good to have someone else in the photo too you or one of your

    colleagues. Local press like photos of local people! Remember, even if

    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

    photos don’t make it into a local newspaper, they

    can be valuable. Make sure you have a camera available!

    ? Follow up - at the end of the event, make sure you feel clear about any

    actions that your MP has agreed to undertake and that they are going to

    write to you to update you on them. Also, do drop your MP a thank you

    note for attending and include any photos that you took at the event.

    Again, to make things easy, we’ve included a draft thank you letter.

Working with the local newspapers

Local press are always interested in good local stories, and may be happy to run a

    piece in the paper about your MP’s visit. It’s a great way of highlighting Lung

    Cancer Awareness Month and for them to raise awareness of lung cancer signs and

    symptoms with their readers.

Once you know when your local MP is attending, you can either invite the local

    press to send a journalist and photographer along or you can take photos yourself

    and send them to the local press with a press release after the event.

In this toolkit you will find a sample invitation for press to attend and a draft press

    release. It’s always good to include quotes in press releases. We’ve included

    suggested quotes from you and your local MP but do make sure you get the quote checked and approved by the MP’s office before you send the press release out.

The easiest way to get the contact details for your local paper is probably to pick

    one up and have a look! However, you can also search on the Newspaper Society

    website at:

If your local press come along on the day, you can give them the press release and

    they may bring their own photographer. If they can’t come, don’t worry. Take

    digital photos yourself and email them to the newsdesk after the event, together

    with the press release.

Alternatively, your MP’s office may be happy to send the photo and a press release

     they’re likely to be in frequent contact with the local media.

    Don’t just think about newspapers - let your local radio station know about the visit too. They may be interested in coming along and interviewing your local MP,

    or even doing an outside broadcast from your pharmacy. You can search for your

    local radio stations online at:

PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

    Talking to your MP topics of conversation

    Your MP will have limited time so it can help to give them a briefing paper to take

    away with them. This will be a useful document for them to refer to in the future if

    they need information about lung cancer. A briefing paper is included in this pack.

    However, your MP may be interested to know that:

    ? Lung cancer is the most common cancer in the world. It is the second

    most common cancer in the UK, after breast cancer, with around

    38,000 cases diagnosed each year

? However, it is by far the UK’s biggest killer cancer, claiming the lives of

    more than 33,500 people every year. This is more than breast cancer,

    prostate cancer, bladder cancer and leukaemia combined

    ? Every year in the average constituency, 60 people will be diagnosed

    with lung cancer and around 52 will die from it

    ? More women die from lung cancer than from breast cancer. In 2005,

    lung cancer claimed the lives of 14,008 women, compared to the

    12,417 women who lost their lives to breast cancer

    ? Someone dies from lung cancer every 15 minutes. It has a very poor

    prognosis. Half of all lung cancer patients die within six months of

    diagnosis. One in four will live to one year and less than one in ten are

    still alive five years after diagnosis.

    ? Lung cancer incidence and mortality are strongly associated with

    deprivation. Lung cancer is two and a half times more common in

    deprived groups than in affluent ones.

? A huge stigma remains with lung cancer. It is still seen as a ‘smoker’s

    disease’, despite the fact that one in eight cases more than 5,500 a

    year - are diagnosed in people who have never smoked.

    ? This means that people may not treat symptoms as important, for

    example, thinking that their cough is just ‘a smoker’s cough’. They

    may delay in seeking medical support, and any delay reduces the

    chance of their disease being successfully treated.

    ? Early detection is critical to improving the chance of successfully

    treating lung cancer. Put simply, detecting lung cancer early can save


    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

Things to ask your MP to do how they can help further

Your MP may be interested in helping further. They could do this in a number of

    ways, for example:

    ? Asking a parliamentary question in the House about lung cancer

    ? Writing to the Secretary of State for Health, Alan Johnson MP, to ask

    what the Government is doing to tackle lung cancer

    ? Tabling or signing an Early Day Motion about lung cancer (these are

    statements which draw Parliament’s attention to important issues –

    MPs can sign up to say they agree with them)

    ? Applying to hold a debate on lung cancer issues

    ? Putting information about Lung Cancer Awareness Month and/or signs

    and symptoms in their constituency newsletter or on their website

    ? Contacting their local hospital and PCT to seek a briefing on local

    services for lung cancer patients

If your MP wants more information in preparation for asking questions or taking

    part in a debate, you can refer them to the UKLCC who will be happy to help.

Keep in touch!

    We’d be really grateful to know if you’re organising a photocall and do let us know how it goes. If there’s anything else that you’d find useful that we’ve not included

    in the pack, please contact Ben Cummings on 020 7340 6236 who will be able to

    advise you.

Useful resources and contacts

The following sources of information may be helpful for you or your local MP:

    UK Lung Cancer Coalition Finding your local MP c/o British Lung Foundation House of Commons Tel. 020 7688 5555 Tel. 020 7219 4272 Email: Web:

    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.


    British Lung Foundation Cancer Black Care Tel. 020 7688 5555 Tel. 020 8961 4151 Web: Web:

    Cancer Research UK Cancerbackup Tel. 020 7242 0200 Tel. 0808 8001234 Web: Web:

    Macmillan Cancer Support Marie Curie Cancer Care Tel. 020 7840 7840 Tel. 020 7599 7777 Web: Web:

    Roy Castle Lung Cancer Foundation Tenovus Tel. 0871 220 5426 Tel. 029 2048 2000 Web: Web:

The UKLCC is the nation’s largest multi-interest group in lung cancer and this is the

    first time all the interested parties have joined together to give people with lung

    cancer a true voice. It is a partnership of leading lung cancer experts, senior NHS

    and Department of Health professionals, charities and healthcare companies:


? Dame Gill Oliver, UKLCC Chair

    ? Dr Mick Peake, Glenfield Hospital, Leicester and National Clinical Lead for Lung


    ? Mr Stephen Falk, Bristol Haematology and Oncology Centre

    ? Professor Stephen Spiro, University College Hospital (co-Chair)

    ? Dr Richard Steyn, Birmingham Heartlands and Solihull NHS Trust

    ? Dr Roger Vaughan, Birmingham Heartlands and Solihull NHS Trust

    ? Gilmour Frew, Cancer Services Collaborative ‘Improvement Partnership’ ? National Lung Cancer Forum for Nurses | Mesothelioma UK

Patient advocacy:

? British Lung Foundation

    ? Cancer Black Care

    ? Cancer Research UK

    ? Cancerbackup

    ? General Practice in Airways Group (GPiAG)

    ? Macmillan Cancer Support

    ? Marie Curie Cancer Care

    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

    ? Roy Castle Lung Cancer Foundation

    ? Tenovus - the cancer charity

Healthcare companies:

? AstraZeneca UK Ltd

    ? GE Healthcare

    ? Lilly UK

    ? Pierre Fabre

    ? Roche

    ? sanofi-aventis

    ? Unisoft Medical Systems

    The UKLCC is supported via funds and in-kind support provided by the partners, who are bound by a funding and governance policy. The production of this toolkit was kindly supported by an unrestricted educational grant from Roche.

    PRX2604 September 2007. Produced with an unrestricted educational grant from Roche.

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