Patient and Public Involvement Forum
Meeting in Public
Patient and Public Involvement Forum for Papworth Hospital
Cardiac Unit Seminar Room, Papworth Hospital
7 December 2005, 7:00 – 9:00pm
Papworth Hospital PPI Forum Members present: Ruth Clapham (Chair),
Elizabeth Gambier, Michael Thilo, Kenneth Warren, Tony Ward
Forum Support Organisation staff: Zoltan Asztalos and Una Sanderson
Apologies: Philip Cork
1. Welcome and apologies Actions
Ruth Clapham opened the meeting, welcomed members and noted FSO to write a letter to apologies. Philip Cork enquiring
about his commitment to
the forum. 2. Minutes of the last meeting
The minutes of the last meeting were approved.
3. Matters arising FSO to pursue Brenda
Bush for the figures on Forum members would like to have figures on the localities/regions patients‟ localities. that patients come from. Brenda Bush promised to find the figures and send them to FSO. It was agreed that the best information Michael Thilo to would be the number of patients grouped by their first four digits of prepare a “challenge postcode. statement” to protect the
interest of patients and Luci Blackwell sent a draft document “A Communications, the public in relation to Consultation and Involvement Strategy for New Papworth Hospital” the hospital‟s future. to the forum for comments. As a response, forum members agreed to write a letter to Mrs Blackwell expressing their dissatisfaction FSO to draft a letter to about the way the hospital handled staff and patient and public Luci Blackwell. opinion on the proposed relocation.
Elizabeth Gambier announced her decision to resign from the
Forum. The Chair thanked Elizabeth for her contribution to Forum
4. New Chair
Forum members agreed that Ruth Clapham will continue chairing
the forum till the end of the current financial year (end of March
5. Nominations to outside bodies Tony Ward and Ken
Warren to contact the The forum proposes to appoint the following representatives to regional offices of British outside bodies: Heart Foundation.
A. British Cardiac Patients Association – Ruth Clapham to
Tony Ward (Cambridge group) and Ken Warren (Bedford contact Pulmonary
Patient Journey Interest
B. British Heart Foundation – Group.
Tony Ward (Cambridge group) and Ken Warren (Bedford
group) Ruth Clapham to
contact Jul Stent,
C. Pulmonary-Hypertension Support Group – Ruth Clapham Cancer Care Nurse to
enquire about cancer
D. Pulmonary Thromboendarterectory Patient Journey Interest care at Papworth
Group – Ruth Clapham Hospital.
E. Cancer patient associations, such as Elizabeth Gambier to
let Tony know the next ? Mesothelioma Patient Support Group
meeting date of Patients ? Cancer Patient User Group
Experience Panel. ? Cancer Patient Information Group
? Cancer Research UK
FSO to inform Brenda – potentially Mike Thilo
Bush that the forum
nominated Tony as a F. Papworth Hospital Patients Experience Panel – Tony Ward
representative to the
Patients Experience G. Huntingdonshire PCT Board meetings – Ruth Clapham
6. Updating the Work Programme Forum Members to
suggest organisations Forum members think that it is best to concentrate their efforts on where presentations the hospital relocation issue. should be made about
PPI forum activities.
A. Follow up work to the report
FSO to confirm date of
B. New project/visit hospital visits,
dependant on funding of
yearly PPI forum
meeting on 20 January.
A. Forum members will visit one old (Chest Medical Unit) and one FSO To draft a letter to new building (Cardiac Day Ward) of the Hospital to assess the Claire Tripp outlining the needs for renovation and/or the justification for relocation. objectives and
requirements of the
The visit can take place either in the morning of 20 or 31 January inspection visit.
2006. Forum members prefer 20 January but if yearly PPI forum meeting will be funded only 31 January will be available.
Objective: to check the old buildings as reasons for the re-location of the Hospital to the Cambridge Biomedical campus.
Requirement for the visits:
1. Short presentation addressing
- the state and shortcomings of the old building(s) and
- the values and potential fate of the new buildings if the
2. Visit to the wards.
Both wards will be visited on the same day. Six forum members
and FSO staff plan to inspect the wards. Forum members would
like to take pictures of the facilities and buildings if that is allowed.
B. Forum members suggested the following additional topics to be
addressed in the Work Plan::
Cleanliness at the hospital
Infection control (invite the Infection Control Nurse)
Car parking issues
Support CPPIH in recruitment
Publicise PPI forum works – Una Sanderson is prepared to give
presentations about PPI forum activities.
7. Future speakers to be invited 1. It was proposed that forum members will invite Jane Belman
only after the Planning Application is submitted.
2. Forum members are waiting for the response from Steven
Bridge who is invited to a forum meeting.
3. Forum members would like to invite Councillors Mandy Smith
and Richard Barrett to the next public meeting.
4. It was discussed that a representative from the Strategic
Health Authority could give a good overview of health issues in
8. Members’ reports on activities and meetings
Ruth Clapham attended the following meetings
- Hinchinbrook Hospital Children‟s Services weekly meetings.
- Meeting with Brenda Bush, Ruth Levine and Zoltan Asztalos
at the Papworth Hospital PALS office to discuss current
- Huntingdonshire PCT meeting where a new member joined
the PCT Board.
- Meeting with Zoltan Asztalos at the FSO office to discuss
progress and Agenda for the next PPI Forum meeting.
- PCT reconfiguration meeting in March.
Mike Thilo contacted the local Hunts Post, which resulted in an
article in the newspaper highlighting the resistance of staff and
patients to the relocation of Papworth Hospital.
Ken Warren attended a „Monitoring and Reviewing Visits‟ course in Bedford. The course was very good and it turned out to be a useful
Tony Ward attended a meeting and a Christmas Social event of
the Cambridge group of the British Cardiac Patients Association.
9. FSO Update FSO to confirm funding
of the yearly PPIF thmeeting. ? The yearly PPI forum meeting is proposed to be held on 20
January 2006. The theme is Community Engagement. The
FSO to confirm date of meeting depends on a successful funding application.
New Year dinner. ? Plans for PCT rearrangement were noted, which will affect
FSO and PPIF structure, too.
? FSO distributed copies of CPPIH guidelines for „Monitoring
and Reviewing Visits‟.
? Addenbrooke‟s Hospital PPI forum plans to have a
conference on Privacy and Dignity sometime in March 2006.
Forum members will be invited.
? There will be a New Year dinner for PPI forums around 12
January 2006 at the Royal Cambridge Hotel. All are
? FSO distributed newsletters.
10. Confirm details for the next meeting
There will be a working meeting on 4 January 2006, 7-9pm, at the Cardiac Unit Seminar Room in Papworth Hospital.