NATIONAL CAPITAL ASTHMA
A MEETING TO DISCUSS CURRENT ISSUES
AFFECTING DC’S HEALTH CARE COMMUNITY
Greater Washington Board of Trade
SunTrust Conference Center
1725 I Street, NW, Washington, DC 20006
Total Attendees = 54
Community Participants (49):
First Name Last Name Organization
1. Anita Amero Coalition for Environmentally Safe Communities 2. Aurora Amoah, MPH Mid-Atlantic Center for Children's Health & the
3. Ray Michael Bridgewater Assembly of Petworth 4. Wanda Burns, RNC, BSN DC Chartered Health Plan, Inc. 5. Cristina Calderón American Lung Association of DC. 6. Jo Campanilla National Kidney Foundation 7. Juanita Campbell Consumer
8. Cherie Carroll National Kidney Foundation 9. Tom Chapman The HSC Foundation 10. Cathy Chapman DC Housing Authority 11. Adrienne G. Collier UMDNJ Robert Wood Johnson Medical School-Camden
12. Linda H. Coulombe National Children's Museum 13. Vernette Daniels DC Department of Health 14. Jaclyn Davis Children’s Health Project of DC, Children's National
15. Edwina Davis-Robinson DC Department of Health 16. Cecil Doggette Health Services for Children With Special Needs, Inc.
17. Janet N. Edwards GlaxoSmithKline
18. Craig Engler, RRT Children's National Medical Center 19. Janine Fetters, M.S. Student Support Center 20. Karina Flores-Hurley Self Reliance Foundation 21. Sandra Fusco-Walker Allergy & Asthma Network Mothers of Asthmatics
22. Lisa A. Gilmore National Capital Asthma Coalition 23. Denise E. Grant, MA DC Department of Health 24. Linda M. Holifield, M.A. DC Department of Health
First Name Last Name Organization
25. Eartha Isaac DC Department of Health
26. Michael Jackson Community Action Group of Holy Comforter Saint Cyprian 27. Dave Jacobs National Center for Healthy Housing 28. Tonya Vidal Kinlow District of Columbia Hospital Association 29. Mary Frances Kornack DC Department of Health
30. Janice Lewis US EPA, Region 3
31. George Mapp Consultant, Information Management 32. John Marchant Howard Consulting Group
33. Mary E. McGowan Allergy & Asthma Network Mothers of Asthmatics 34. La-Fuell Moore US EPA, Region 3
35. Lessly Palencia Spanish Catholic Center of Catholic Charities 36. Dr. Jerome A. Paulson, M.D. Mid-Atlantic Center for Children's Health & the
37. Debbie Quint Improving Pediatric Asthma Care in the District of Columbia 38. Reginald Ringgold DC Public Schools
39. Joanna Rivera, RN Mary's Center for Maternal and Child Care 40. Dr. Candace Scales. M.D. Department of Youth Rehabilitation Services 41. K. Edward Shanbacker Medical Society of the District of Columbia 42. Rhonique Shields-Harris, MD Children’s Health Project of DC, Children's National
43. Theresa Shivers United Planning Organization 44. Susan Sweitzer Asthma & Allergy Foundation Maryland-Greater DC
45. Debi H. Tucker, Esq. American Hospital Association 46. Shanita Verner Consumer
47. Michael D. Ward, BS, CPA Walker & Co., LLP
48. Victoria Wells American Cancer Society, South Atlantic Division 49. Malissa Winograd Children's Environmental Health Network
National Capital Asthma Coalition (NCAC) (1):
1. Lisa A Gilmore Executive Director
1. Frank J. Howard, Jr. Howard Consulting Group, Inc. 2. Lasava S Tidwell Howard Consulting Group, Inc. 3. John Marchant Howard Consulting Group, Inc. 4. Jeremy Art Howard Consulting Group, Inc.
We thank our partners for their many contributions to NCAC and Rx4DC. We also thank
Rx4DC for providing the luncheon and additional in-kind support for this meeting.
NCAC and Rx4DC Partners – Minutes from July 26, 2007 Meeting Page 2 of 10
NCAC and Rx4DC Meeting Packet:
1. Rx4DC Brochure: “A Partnership for Prescription Assistance Program. A one-
stop CLEARINGHOUSE for access to FREE and NEARLY FREE medicines” 2. NCAC Handout: “The DC Asthma-Friendly Training and Awards Program: A
(The Asthma-Comprehensive School Asthma and Anaphylaxis Management Campaign”
Friendly Schools Training and Awards Program is funded, in part, by the Government of the
District of Columbia, Department of Health, Maternal and Primary Care Administration)
3. Asthma Action Plan: New standard Asthma Action Plan form developed by Children’s
National Medical Center and NCAC’s Health Services and Quality Improvement Committee
4. Report: “NCAC Progress Report/Committee Updates as of July 2007” 5. Legislation: “Student Access to Treatment Emergency Act of 2007” developed and
advocated by NCAC’s Policy Committee and introduced by Councilmember David Catania
passed unanimously by the Council of the District of Columbia on July 10, 2007
6. Join NCAC: Organizational Members, Membership Form, and Committee Descriptions Right Side:
7. Meeting Agenda: “NCAC and Rx4DC Partners: A Meeting to Discuss Current
Issues Affecting DC’s Health Care Community”
8. Activity: “An Interactive Framework for Building Coalitions”
?9. Flyer: “Asthma Management and Education Program,” presented by Asthma and
Allergy Foundation of America and co-hosted by NCAC. To request the program, please
contact Lisa A. Gilmore, NCAC, at 202-223-1882 or at firstname.lastname@example.org
10. Flyer: “Waiting to Exhale Asthma Seminar” sponsored by Children’s Health Project
of DC, Wednesday, August 15, 2007, 5:30 p.m., Children’s Health Center @ THEARC,
1901 Mississippi Avenue, SE, Washington, DC. To RSVP, please call 202-436-3060
11. Flyer: “Essentials for Healthy Homes Practitioners Course,” August 20-21, Alexandria,
VA, $45. To register, go to http://www.healthyhomestraining.org/schedules.htm#JHU or
call Mary L. Doyle at 410-955-0423 or at or email@example.com.
th12. Flyer: “5 Annual Conference on Children’s Health and the Environment,”
October 6, 2007, Hyatt Reston, VA, organized by organized by the Pediatric
Environmental Health Specialty Unit (PESHU) of Region 3; the Mid-Atlantic Center
for Children’s Health and the Environment (MACCHE). For details, visit
http://www.gwu.edu/~macche/restonconference07/ or contact Aurora Amoah at
firstname.lastname@example.org or at 1-866-MACCHE1 (622-2431).
Lunch: 11:15 a.m.
Meeting called to order: 11:30 p.m.
NCAC and Rx4DC Partners – Minutes from July 26, 2007 Meeting Page 3 of 10
I. Special Presentation (11:30 AM – 11:35 AM)
A. In Appreciation of Walker & Company, LLP
? Tom Chapman, Chair, NCAC’s Board of Directors, expressed NCAC’s
appreciation to Walker & Company for the pro bono accounting services it has
generously donated by NCAC. From setting up NCAC’s budget and
accounting system last year to completing our first IRS 990 this May, Walker
& Co., LLP has enabled NCAC to make a smooth transition from functioning
as a program to operating as an independent 501(c)(3) organization.
? As a token of NCAC’s appreciation, Dr. Chapman presented Michael D.
Ward, Partner, Walker & Company, LLP with a pencil box created by the
homeless and at-risk youth members of the Covenant House Washington
Artisans Program (www.covenanthousedc.org) and engraved with the
message, “Thank you for your valuable service.” NCAC also provided
pencil boxes to Walker & Co.’s Ronald P. Walker, Managing Partner, and
Jeffery Skinner, Accountant, for their support and contributions.
II. Welcome (11:35 AM – 11:45 AM)
? Lisa A. Gilmore, NCAC’s Executive Director, and Frank Howard, Rx4DC,
opened the meeting and asked participants to introduce themselves and to
make a brief statement to the group.
III. Discussion of Current Issues Affecting DC’s Health Care Community
(11:45 AM – 11:55 AM)
A. Rx4DC Program Update
? Frank Howard presented an overview of the Rx4DC program
(www.Rx4DC.org or 202-457-9432), created by about four years ago to
provide a single point of access to nearly 475 public, private, and local DC
Patient Assistance Programs for free and nearly free medicines.
? Rx4DC subsequently became part of the national Partnership for Prescription
Assistance Program (PPA) (www.pparx.org) launched by the Pharmaceutical
Research and Manufacturers of America as part of a national coalition of
national, state, and local organizations. Montel Williams became a national
PPA spokesman in January 2006.
? Since its launch in April 2005, PPA has helped connect nearly connect nearly
four million people to patient assistance.
? PPA has a real presence in the DC area with many involved local organizations.
For example, the PPA Bus visited Mary’s Center for Maternal and Child Care
about a month and a half ago to help individuals access this service. The PPA Bus
also has toured Maryland, Delaware, and other local and regional sites.
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? Frank shared the story of an individual with kidney disease whose insurance
coverage maxed out at $1,000 a year for medicines but whose average monthly
medicine costs were $900. PPA was able to take care of his medication needs.
? The PPA Program also helps patients contact government programs such as
Medicaid, Medicare and SCHIP and assists Medicare beneficiaries with
information about the Medicare Prescription Drug Benefit.
? Frank encourage participants to join Rx4DC to bring this program to their
clients and members. Rx4DC also can provide trainings on how to use the
Rx4DC program to help patients in need. To learn more about
participating in Rx4DC or to schedule an Rx4DC training, please
contact the Howard Consulting Group, Inc. at 202-429-4390 or at
B. Chronic Disease Initiatives
? A new coalition, known as the Partnership to Fight Chronic Disease
(www.fightchronicdisease.org), is working to address the growing problems
of asthma, diabetes, hypertension, obesity, kidney disease, and other chronic
conditions. Chaired by former Surgeon General Richard Carmona, MD,
MPH, the coalition includes a cross-section of health professional, business,
labor, consumer, and community organizations working together to educate
the public about chronic disease and to push to make chronic disease a
primary concern for state and federal policy-makers.
IV. Partner Program Updates (11:55 AM – 12:20 AM)
A. Upcoming Events
? Lisa Gilmore referred to the flyers included in the meeting packets asked
participants to share information about their upcoming activities:
- Dr. Rhonique Shields-Harris described her upcoming Waiting to Exhale
Asthma Seminar at THEARC on Wednesday, August 15, 2007
sponsored by the Children’s Health Project of DC, Children’s National
Medical Center. The seminar will be held at the Children’s Health Center
@ THEARC, 1901 Mississippi Avenue, SE, Washington, DC starting at
5:30 a.m. To RSVP, please call 202-436-3060. For the families who attend,
there will be a raffle for a free nebulizer machine and families also can
sign up for a free asthma home assessment.
- Dave Jacobs of the National Center for Healthy Housing (NCHH) invited
participants to register for NCHH’s Essentials for Healthy Homes Practitioner
Course to be conducted by the Johns Hopkins Bloomberg School of Public
Health in Alexandria, Virginia on August 20-21, 2007. The program also will
offer the National Environmental Health Association (NEHA) credential exam
immediately after the course. To register, go to
http://www.healthyhomestraining.org/schedules.htm#JHU or call Mary L. Doyle
at 410-955-0423 or at or email@example.com. More information about the
NEHA exam is at http://www.healthyhomestraining.org/Credential/index.htm.
NCAC and Rx4DC Partners – Minutes from July 26, 2007 Meeting Page 5 of 10
th- Dr. Jerome Paulson announced the 5 Annual Conference on Children’s Health and the Environment, organized by the Pediatric Environmental
Health Specialty Unit of Region 3,the Mid-Atlantic Center for Children’s Health and the Environment (MACCHE). Topics will explore the
intersection between the environment and child health issues, and
continuing education credits will be available. For details, visit
http://www.gwu.edu/~macche/restonconference07/ or contact Aurora
Amoah at firstname.lastname@example.org or at 1-866-MACCHE1 (622-2431).
- Lisa Gilmore described the Asthma and Allergy Foundation of America’s ?(AAFA) Asthma Management and Education Program which
provides an overview of asthma, factors contributing to asthma severity,
medications, peak flow meters, and the patient/clinician partnership. The
program includes continuing education credits for registered nurses, nurse
practitioners, and respiratory therapists. NCAC is working with AAFA to
schedule dates for this FREE training in the Greater Washington, DC area.
To request the program, please contact Lisa A. Gilmore, NCAC, at 202-
223-1882 or at email@example.com.
- Susan Sweitzer, Executive Director of AAFA’s Maryland-Greater Washington, D.C. Chapter added that AAFA offers a number of additional
programs for professionals and for the community.
- Lisa thanked Wanda Burns from Chartered Health Plan for co-hosting
NCAC’s Physician Asthma Care Education (PACE) Seminar on May 22,
2007 and Ms. Denise Grant, Tobacco Program Manager, DC Department
of Health for providing the funding support for this seminar.
- Denise Grant, Program Manager, Tobacco Control Program, DC
Department of Health Tobacco Control Program, announced the first
annual DC Tobacco Free Families Conference for DC Community
and Faith-Based Organizations to be held on September 27, 2007 from
8:30 a.m. to 5:00 p.m. at the Blackburn Conference Center, Howard
University, Washington, DC. To register, call 202-466-5864 or visit
www.dctff.org and click on “contact us.” Lisa added that through the American Lung Association and the American
Cancer Society, DC residents now can call 1-800-QUIT-NOW to receive
free tobacco cessation counseling and can visit several distribution clinics to
receive the Nicoderm CQ patch and the Commit lozenge at no cost thanks to
a donation by GlaxoSmithKline. Visit www.dctff.org for more information. - Lessly Palencia of Spanish Catholic Center of Catholic Charities
announced that a pulmonologist is now available at Spanish Catholic
Center two days a week. Spanish Catholic Center provides preventative
and curative primary care services for low-income, uninsured adults (1618
Monroe Street, Washington, DC 20010) and for children and adults (1015
University Boulevard East, Silver Spring, MD). For more information,
contact Lessly Palencia at (202) 939-2411.
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V. DC Department of Health’s DC CAN Program (12:20 PM – 12:40 PM)
A. Student Access to Treatment Emergency Act of 2007 ? In her introduction of Edwina Davis-Robinson, Program Manager, DC
Control Asthma Now (DC CAN) Program, DC Department of Health (DOH),
Lisa Gilmore highlighted Edwina’s key role in the passage of the “Student Access to Treatment Emergency Act of 2007,” developed and advocated by
DOH, DC Public Schools, and NCAC’s Policy Committee and introduced by
Councilmember David Catania. The legislation, passed unanimously by the
DC Council on July 10, 2007 and pending Mayor Fenty’s signature, permits a student with a medication action plan to possess and self-administer asthma
and anaphylaxis medications. Thanks to the support of these partners, the
legislation also includes a provision to allow, through subsequent regulation,
student self-administration of other medications for potentially life-
threatening illness (e.g., diabetes).
[Note: NCAC also is grateful to Sandra Fusco-Walker and her colleagues at
the Allergy and Asthma Network Mothers of Asthmatics (AANMA) for their
ongoing assistance over the past two years in support of this policy. AANMA
championed students’ rights to lifesaving medications at the local, state, and
federal level, resulting in the passage of the Public Law 108–377, “The Asthmatic Schoolchildren’s Treatment and Health Management Act of 2004,” signed into law by President Bush on October 30, 2004.]
B. DC Control Asthma Now (DC CAN) Program, DC Department of Health ? Edwina Davis-Robinson noted that DC CAN is currently in the last year of a
three-year funding cycle from the Centers for Disease Control and
Prevention for asthma management and surveillance. DC CAN recently
submitted a two-year funding renewal proposal to the CDC. It is expected
that all of the states will be applying for this funding this year, making this
process a highly competitive one.
? DC CAN has had a number of notable accomplishments. For example, it:
1. Conducted a State of Asthma in the District of Columbia Conference on
September 13, 2006 as a first step to revising the strategies and objectives
in the Strategic Asthma Plan for the District of Columbia. 2. Funded about 15 asthma education programs in DC charter schools.
3. Educated 100 daycare providers on asthma management.
4. Conducted a World Asthma Day event on Tuesday, May 1, 2007 at River
Terrace Elementary School (Ward 7) with Dr. Rhonique Shields-Harris,
Children’s Health Project of DC. The program engaged students in
grades three through six in interactive activities in each classroom to
learn about asthma and to reduce the stigma of asthma. The National
Children’s Museum assisted with the program. Altogether,
approximately 150 children participated in the program.
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5. Supported the collection of asthma emergency department (ED) data from
DC hospitals by IMPACT DC (Improving Pediatric Asthma Care in the
District of Columbia), including, for the first time, data on adult asthma ED
visits. Most notably, a lot of other states do not have access to such data
from their hospitals or have to mandate its collection through legislation.
? Edwina added that in 2005, following the passage of the federal Asthmatic
Schoolchildren’s Treatment and Health Management Act of 2004 which
gave funding “preference to states that require schools to allow students to
self-administer medication to treat that student’s asthma or anaphylaxis,”
NCAC took the ball and started rolling with it to develop similar legislation
in DC and to work collaboratively on a standard Asthma Action Plan form.
? Further, Edwina noted, Eartha Isaac led DOH’s successful effort to add a provision to the DC law to allow student self-administration of other
medications for potentially life-threatening illness (e.g., diabetes) through
regulation rather than through future legislation.
C. Participant Discussion
? Lisa added that DC CAN’s work with stakeholders to update its Strategic
Asthma Plan will provide useful guidance to NCAC and its committees.
? In response to a question, Eartha Isaac, Policy Advisor, Child, Adolescent and
School Health Bureau, DOH, highlighted the fact that the Student Access to
Treatment Emergency Act of 2007 applies to all DC public, private, and
parochial schools, not just DC Public Schools (DCPS). It provides an
opportunity for DOH to improve school health services for all DC children.
? Victoria Wells from the American Cancer Society asked Lisa Gilmore to
discuss NCAC’s current policy agenda. Lisa responded first that NCAC is assisting DOH and DCPS in policy implementation through its Asthma-
Friendly Schools Training and Awards Program. NCAC is producing an
school asthma/anaphylaxis manual and a training session to be attended by
all DC public and public charter schools scheduled for October 18 and to be
repeated on October 19. Dr. Jerry Paulson and Aurora Amoah from The
George Washington University’s Mid-Atlantic Center for Children’s Health and the Environment are assisting NCAC in this program along with a
workgroup of committed NCAC partners.
Second, Lisa added, NCAC is participating in a workgroup convened by the
DC Primary Care Association to develop school health guidelines that will
put in place standards and best practices for health services in DC Public
Schools. The guidelines will cover a range of school health issues.
? Lisa then asked Victoria for policy recommendations for NCAC. Victoria
discussed the need to get DC Medicaid to provide coverage for tobacco
cessation counseling and related services to assist tobacco users to quit.
NCAC and Rx4DC Partners – Minutes from July 26, 2007 Meeting Page 8 of 10
VI. Coalition-Building (12:40 PM – 1:20 PM)
A. A Framework for Building Successful Coalitions ? Lisa Gilmore gave a PowerPoint presentation on the steps to coalition success
excerpted with permission from a presentation by Frances D. Butterfoss, PhD,
an expert on coalition development at the Division of Community Health and
Research, Eastern Virginia Medical School. Lisa gave an overview of the
benefits and challenges of coalitions and why coalition members choose to
participate or choose not to participate.
? She concluded with a list of additional resources on coalitions, including Dr.
Butterfoss’ recently published a new book on coalitions (Butterfoss, FD.
Coalitions and Partnerships for Community Health. San Francisco, CA: Jossey-Bass, 2007) and the Community Tool Box (at http://ctb.ku.edu) created
and maintained by the Work Group on Health Promotion and Community
Development at the University of Kansas in Lawrence, Kansas.
? Lisa then presented a series of tools to stimulate a discussion on how to
recruit and retain an active diverse leadership and engaged participants in an
activity using NCAC as an example to identify what types of organizations
and individuals are in the coalition and what sectors are underrepresented.
? At the conclusion of the activity, participants reviewed the breakdown of
NCAC member organizations by sector and shared the following observations:
- Environmental organizations are underrepresented in the coalition.
- Professional associations, such as the DC Hospital Association and the
Medical Society of the District of Columbia, should be identified as a
separate sector, not grouped under “Businesses.” - Furthermore, “Education” is such a broad category that it could include
schools, academic institutions, and organizations that provide educational
services on various issues in the community.
- Moreover, some organizations could be listed under multiple sectors, for
example, a community-based organization that provides education
services could be included under “Education” as well as “Community.”
- Faith-based organizations are very engaged in Rx4DC’s education and
community outreach activities to spread the word and very active in
advocacy, including writing letters and making phone calls to
policymakers. While NCAC has partnered with faith-based groups on
specific events to reach the community, there are no faith-based
organizations listed among NCAC’s members or active in its committees.
NCAC and Rx4DC Partners – Minutes from July 26, 2007 Meeting Page 9 of 10
VII. Wrap Up (1:20 PM – 1:30 PM)
? Participants engaged in an active discussion of ongoing environmental
concerns in DC, including the high rate of asthma among children and adults
living near the Potomac Electric Power Co. (PEPCO) generating plant in the
River Terrace Community in Ward 7. Janice Lewis from the Air Protection
Division in Region III of the Environmental Protection Agency (EPA)
indicated that her colleague, Reginald Harris, Senior Toxicologist/Regional
Environmental Justice Coordinator Office of Enforcement, Compliance and
Environmental Justice, continues to work on this issue. Reginald Harris may
be reached at firstname.lastname@example.org. Janice also continues to spend
time in this area to keep up-to-date on matters of concern to the DC
community. Janice added that DC has applied for an EPA Clean Schools Bus
USA grant to retrofit its school buses to make them less polluting.
? Michael Jackson of the Community Action Group of Holy Comforter Saint
Cyprian announced that his program recently enrolled a number of DC residents
in training programs at the University of the District of Columbia to enable
them to become certified in pest management and as home inspectors
B. Additional Announcements ? Karina Flores-Hurley, Chief Editor of ConCiencia Newswire Service at the Self
Reliance Foundation invited participants to submit news stories to be distributed
as Spanish-language health and science content to media outlets nationwide.
Karina may be reached at 202-360-4111 or at Karina.Hurley@srfdc.org.
? Janice Lewis noted that there is currently a memorandum of understanding
between the EPA and the U.S. Department of Health and Human Services,
Administration for Children and Families, Head Start Bureau to conduct
outreach nationwide on secondhand smoke and asthma. More information on
“Care for Their Air: Promoting Smoke-free Homes for Head Start Families”
is available at http://www.epa.gov/iaq/headstart/index.html.
? Wanda Burns reported that Chartered Health Plan has teamed up with Vaccines
for Children Program to administer DC schoolchildren their required
vaccinations before the coming school year. Immunization clinics will be held
at THEARC and other community sites. For more information, please contact
Wanda Burns at (202) 408-3995 or email@example.com.
? Theresa Shivers of the United Planning Organization (UPO) asked for participants
to assist UPO in recruiting children ages 3-5 years old for the Head Start Program.
There also are a smaller number of spaces available for children up to 3 years of
age in UPO’s Early Head Start. For applications, call UPO at (202) 238-4600, then
dial “1” and x“5” for Pre-School, Head Start, and daycare programs. ? Lessly Palencia announced that the Spanish Catholic Center of Catholic Charities
will be holding a dental clinic on August 18 from 9:00 a.m. to 11:00 a.m. at its
Mount Pleasant Branch at 1618 Monroe Street, NW, Washington, DC 20010.
Meeting adjourned: 1:30 p.m.
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